Here are study updates for DRRP and RRTC as of February 24, 2012
DRRP 1 –
Intro letters were sent on 1/18/12 to 73 persons with SCI who have already participated in the RRTC 2/Surv study – survey was sent at the beginning of February.
As of 2/24 – we have 472/500 collected (94%)
The mailing to the 73 people will be the LAST attempt at data collection.
DRRP 2 –
We currently have 547 responses for this study – and have SURPASSED MUSC’s goal of 458
Craig – data collection has started –they have 65 responses as of 2/24/12
Rancho – data collection has started – they have 104 responses as of 2/24/12
All totaled, we have 714 responses out of the 834 needed (86%)
RRTC 1 –
The first mailing went out at the beginning of April 2011 – we have received 572 (does not include ambulation) responses out of 877 – they are currently making phone calls here (2nd mailing went out in May)
The second mailing went out on 9/29, and we have 101/201 respondents for a total of 673 respondents
The next mailing will go out in April (N=134)
· NOTE: including ambulation, we have 969 out of the projected 1342 (72%)
RRTC 2 –
The first mailing went out in mid-May 2011 – we have received 398 responses out of 939 mailed
We have sent out the 2nd mailing for those 939 (sent on 8/8) and calls are being made
The second mailing was sent in Jan 2012 to 750 – we have received 162 responses for a TOTAL of 610 respondents (64% of our total)
RRTC 3 (at Rancho)-
Rancho has now collected data on 101 participants (in conjunction with DRRP 2).
Tuesday, February 28, 2012
Wednesday, February 22, 2012
Consumer Advisory Panel-DRRP and RRTC
On February 16, 2012, our consumer advocate, Richard Aust, conducted a meeting of the consumer advisory panel (CAP) at MUSC. The CAP is comprised of a group of consumers that gives their views on our research and allows us to tailor research findings to the community. The main discussion for the meeting focused on unintentional injuries after SCI and strategies to get people into the workforce after SCI.
The group compiled a list of consequences of having an unintentional injury after SCI including missing work, school, and church activities, seclusion in their home, emotional depression, increased stress and financial strain, limited recreation and ability to drive, and loss of independence.
The participants discussed the effectiveness of creating a blog which focuses on secondary conditions after SCI. The group agreed that this blog could be useful if a group of 3-5 people with SCI and varied demographics acted as the facilitator. A medical professional should be available to address questions which are asked when people in the community respond to the blog topics. In addition, videos which address secondary conditions would be an excellent strategy to create interest and community involvement.
In discussing employment after SCI, several common themes surfaced for what is needed for a person to re-enter the work force. This included education, post-injury training, use of internet and social networking, knowledge of personal skill sets, and overall persistence.
Lastly, the participants expressed that volunteer work needs more attention in field of employment after SCI research since these opportunities are often the transitional stage of getting people back to work.
Tuesday, February 21, 2012
Manuscript accepted
The following manuscript was accepted for publication in the mentored issue of Topics in Spinal Cord Injury Rehabilitation which will be out in June 2012.
1. Brown, S., Saunders, L.L., & Krause, J.S. (in press). Racial disparities in depression and life satisfaction after spinal cord injury: A mediational model. Topics in Spinal Cord Injury Rehabilitation.
The first author, Simon Brown, was a medical student who worked with our team during the summer of 2010. The manuscript was supported by the RRTC grant (H133B090005), the DRRP grant (H133A080064), the NIDRR 10year grant (H133G050165), and the NIH 10year grant (1R01 NS 48117).
ABSTRACT:
Purpose: To identify the relationship of race and gender with 3 aspects of life satisfaction and depressive symptoms among participants with spinal cord injury (SCI), evaluating the extent to which socioeconomic factors mediate any observed relationships.
Methods: Data for this cross-sectional survey were collected at a Medical University in the Southeastern United States. Participants included 1549 adults with traumatic SCI of at least 1 year duration who were identified through a Southeastern United States SCI Model System of care. Three aspects of life satisfaction (home life satisfaction, vocational satisfaction, global satisfaction) were measured using the 20 satisfaction items from the Life Situation Questionnaire-Revised. Depressive symptoms were measured with the Older Adult Health and Mood Questionnaire. MANCOVA was used to assess mediation of socioeconomic status between race and life satisfaction and depression.
Results: Home life satisfaction and vocational satisfaction were significantly related to race, with white participants scoring higher than black participants during the first stage of the regression analysis. However, socioeconomic factors mediated the relationships such that race was no longer significant after considering economic factors. Race still was significantly associated with global satisfaction after adjusting for socioeconomic factors. Depression was not significantly related to race. Gender was unrelated to all study outcomes. Of the socioeconomic mediators, family income was a significant predictor of each outcome, whereas education was only predictive of vocational satisfaction.
Conclusion: Socioeconomic factors are important mediators of the relationship between race and some, but not all, aspects of life satisfaction among those with SCI. Family income and, to a lesser extent, education should be considered when evaluating race differences in life satisfaction after SCI.
Keywords: spinal cord injury; health status disparities; depression; socioeconomic factors
1. Brown, S., Saunders, L.L., & Krause, J.S. (in press). Racial disparities in depression and life satisfaction after spinal cord injury: A mediational model. Topics in Spinal Cord Injury Rehabilitation.
The first author, Simon Brown, was a medical student who worked with our team during the summer of 2010. The manuscript was supported by the RRTC grant (H133B090005), the DRRP grant (H133A080064), the NIDRR 10year grant (H133G050165), and the NIH 10year grant (1R01 NS 48117).
ABSTRACT:
Purpose: To identify the relationship of race and gender with 3 aspects of life satisfaction and depressive symptoms among participants with spinal cord injury (SCI), evaluating the extent to which socioeconomic factors mediate any observed relationships.
Methods: Data for this cross-sectional survey were collected at a Medical University in the Southeastern United States. Participants included 1549 adults with traumatic SCI of at least 1 year duration who were identified through a Southeastern United States SCI Model System of care. Three aspects of life satisfaction (home life satisfaction, vocational satisfaction, global satisfaction) were measured using the 20 satisfaction items from the Life Situation Questionnaire-Revised. Depressive symptoms were measured with the Older Adult Health and Mood Questionnaire. MANCOVA was used to assess mediation of socioeconomic status between race and life satisfaction and depression.
Results: Home life satisfaction and vocational satisfaction were significantly related to race, with white participants scoring higher than black participants during the first stage of the regression analysis. However, socioeconomic factors mediated the relationships such that race was no longer significant after considering economic factors. Race still was significantly associated with global satisfaction after adjusting for socioeconomic factors. Depression was not significantly related to race. Gender was unrelated to all study outcomes. Of the socioeconomic mediators, family income was a significant predictor of each outcome, whereas education was only predictive of vocational satisfaction.
Conclusion: Socioeconomic factors are important mediators of the relationship between race and some, but not all, aspects of life satisfaction among those with SCI. Family income and, to a lesser extent, education should be considered when evaluating race differences in life satisfaction after SCI.
Keywords: spinal cord injury; health status disparities; depression; socioeconomic factors
Monday, February 20, 2012
Presentation at Spelman College-CHORCUP
Dr. Lee Saunders presented to students and faculty at Spelman College on Feburary 16, 2012. She presented on the goals of the Center on Health Outcomes Research and Capacity Building among Underserved Populations with SCI and TBI. She also presented the results of Bridget Peter's summer project (a graduate of our summer undergraduate research program and of Spelman). Students were encouraged to apply to our summer undergraduate research program. There were about 50 faculty and students in attendance. This presentation was part of one of the goals of our Center which is to educate other professionals on developing rehabilitation research programs with underserved populations.
Wednesday, February 8, 2012
Manuscript Accepted
The following manuscript was accepted for publication in the Archives of Physical Medicine and Rehabilitation and utilized research from NIH 10yr, NIDRR 10yr, RRTC, and DRRP:
Saunders, L.L., Krause, J.S., & Acuna, J. (in press). Association of race, socioeconomic status, and health care access with pressure ulcers after spinal cord injury. Archives of Physical Medicine and Rehabilitation.
ABSTRACT
Objective: To assess the associations of race and socioeconomic status (SES) with pressure ulcers (PU) after accounting for health care access (HCA) among persons with spinal cord injury (SCI).
Design: Cross-sectional.
Setting: Large specialty hospital in the southeastern United States.
Participants: Persons with traumatic SCI who 1) had residual effects from their injury, 2) were 18 years or older at survey, and 3) were a year or more post-injury at survey (n=2,549).
Intervention: None.
Main Outcome Measures: Outcomes were measured by mail-in survey: having a current PU (yes vs. no), having a PU in the past year with or without reduced sitting time (no PU, no reduced sitting time, month or less, 5+ weeks), and having at least 1 PU surgery since SCI onset (yes vs. no).
Results: Of participants, 39.3% reported a PU in the past year, 19.9% had a current PU, and 21.9% reported having had surgery for a PU since their SCI onset. While race was preliminarily associated with each PU outcome, it became non-significant after controlling for SES and HCA. In each analysis, household income was significantly associated with PU outcomes after controlling for demographic and injury factors and remained significant after accounting for the HCA factors. Persons with lower income had higher odds of each PU outcome. HCA was not consistently related to PU outcomes.
Conclusions: Even after accounting for HCA, household income, a measure of SES, remained significantly associated with PU outcomes after SCI; however, race became non-significant.
Key Words: spinal cord injury; pressure ulcer; race; socioeconomic factors; health services accessibility
Saunders, L.L., Krause, J.S., & Acuna, J. (in press). Association of race, socioeconomic status, and health care access with pressure ulcers after spinal cord injury. Archives of Physical Medicine and Rehabilitation.
ABSTRACT
Objective: To assess the associations of race and socioeconomic status (SES) with pressure ulcers (PU) after accounting for health care access (HCA) among persons with spinal cord injury (SCI).
Design: Cross-sectional.
Setting: Large specialty hospital in the southeastern United States.
Participants: Persons with traumatic SCI who 1) had residual effects from their injury, 2) were 18 years or older at survey, and 3) were a year or more post-injury at survey (n=2,549).
Intervention: None.
Main Outcome Measures: Outcomes were measured by mail-in survey: having a current PU (yes vs. no), having a PU in the past year with or without reduced sitting time (no PU, no reduced sitting time, month or less, 5+ weeks), and having at least 1 PU surgery since SCI onset (yes vs. no).
Results: Of participants, 39.3% reported a PU in the past year, 19.9% had a current PU, and 21.9% reported having had surgery for a PU since their SCI onset. While race was preliminarily associated with each PU outcome, it became non-significant after controlling for SES and HCA. In each analysis, household income was significantly associated with PU outcomes after controlling for demographic and injury factors and remained significant after accounting for the HCA factors. Persons with lower income had higher odds of each PU outcome. HCA was not consistently related to PU outcomes.
Conclusions: Even after accounting for HCA, household income, a measure of SES, remained significantly associated with PU outcomes after SCI; however, race became non-significant.
Key Words: spinal cord injury; pressure ulcer; race; socioeconomic factors; health services accessibility
Tuesday, February 7, 2012
RRTC and DRRP In-service
RRTC & DRRP In-service at the Disability Resource Center (ILC)
On February 6, 2012, our consumer advocate, Richard Aust, from MUSC conducted an in-service meeting for the RRTC & DRRP at the Disability Resource Center (DRC ILC) in North Charleston, South Carolina. Mr. Aust met with all DRC staff to discuss the ongoing SCI research activities of the RRTC & DRRP. DRC staff were every receptive to getting involved to disseminate RRTC & DRRP study results as they become available. Given that 19 % of the SCI surveillance participants reported receiving no in-patient or out-patient rehabilitation services, DRC executive director, Gwen Gillenwater, expressed that she would be interested in coordinating secondary conditions trainings for SCI consumers in the Tri-county area (Charleston, Dorchester, Berkley) in the areas of preventing skin sores, UTI and other trainings as recommended by Shepherd Center staff. Note that Shepherd Center is currently conducting in-service trainings to rehabilitation staff through South Carolina in order to reinforce the most effective practices to reduce secondary conditions after SCI.
In addition, DRC staff are very involved in working with the Latino population in Charleston, Berkley and Dorchester counties. Liuana Zanouski, DRC Latino Outreach Coordinator, agreed to meet with our staff member, Josh Acuna, to establish a working relationship in order to disseminate SCI underserved population study results. DRC staff, Rachel McCammon, expressed that she worked with an American Indian outreach organization, the Grandmothers’ Council, in Pennsylvania. She agreed to forward Mr. Aust contact information for future dissemination of DRRP study results.
Mr. Aust discussed the need of DRC to update their website to create a research link under their education track. Ms. Gillenwater agreed to create the research link to provide research information on a variety of disability topics. Nathan Todd, DRC Program Coordinator, is in the process of redesigning the DRC website and confirmed that he will create a research link.
On February 6, 2012, our consumer advocate, Richard Aust, from MUSC conducted an in-service meeting for the RRTC & DRRP at the Disability Resource Center (DRC ILC) in North Charleston, South Carolina. Mr. Aust met with all DRC staff to discuss the ongoing SCI research activities of the RRTC & DRRP. DRC staff were every receptive to getting involved to disseminate RRTC & DRRP study results as they become available. Given that 19 % of the SCI surveillance participants reported receiving no in-patient or out-patient rehabilitation services, DRC executive director, Gwen Gillenwater, expressed that she would be interested in coordinating secondary conditions trainings for SCI consumers in the Tri-county area (Charleston, Dorchester, Berkley) in the areas of preventing skin sores, UTI and other trainings as recommended by Shepherd Center staff. Note that Shepherd Center is currently conducting in-service trainings to rehabilitation staff through South Carolina in order to reinforce the most effective practices to reduce secondary conditions after SCI.
In addition, DRC staff are very involved in working with the Latino population in Charleston, Berkley and Dorchester counties. Liuana Zanouski, DRC Latino Outreach Coordinator, agreed to meet with our staff member, Josh Acuna, to establish a working relationship in order to disseminate SCI underserved population study results. DRC staff, Rachel McCammon, expressed that she worked with an American Indian outreach organization, the Grandmothers’ Council, in Pennsylvania. She agreed to forward Mr. Aust contact information for future dissemination of DRRP study results.
Mr. Aust discussed the need of DRC to update their website to create a research link under their education track. Ms. Gillenwater agreed to create the research link to provide research information on a variety of disability topics. Nathan Todd, DRC Program Coordinator, is in the process of redesigning the DRC website and confirmed that he will create a research link.
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